DOUBLE INDIGO 666 WORLD TOUR
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Love your attitude, you’re a real trooper @sabergirl!
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Hi Ann,
Sorry to hear about your diagnosis. My girlfriend was diagnosed with Ms approx 10yrs ago, you wouldn't know it if you met her but she did suffer from dizziness and fatigue. She never went down the DMD route, as at the time they were only available intravenously and with small children, she thought not a great idea. Last year she decided to look into HSCT and done her research. The pioneering guy is Dr Ruiz in Mexico, long story short, we raised the money and off she went with 10 others from around the world. She was out there a month and last week was her stem cell birthday (thats when you are given back your virgin stem cells to help regrow your new immune system). She feels great, the and is so grateful to have the oppurtunity to have a crack at halting this horrible disease.
All the best on your journey and please feel free to Pm me.
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Thank you for all the kind words and encouragement, everyone!
Wow, @bryaneidins70, I've read a little bit about HSCT, and it sounds very intense. I'm so glad to hear that your girlfriend is feeling great! I hope that the she has results from the reset. Thus far, my symptoms haven't been severe enough for me to consider drastic measures like that, but I will certainly watch the progress of that treatment with great interest. Thank you for being open to sharing your experience with me, talking to other people about their path with MS has helped give me invaluable perspective.
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Mía isn’t feeling good for the past few days, so my wife took her to the vet this morning, after some snuggles. She’s running a fever, but no signs of infection or bacteria, so we just have to wait and see and hope that she feels better, soon.
Marcia and I are both off today, which is rare for use to have the whole day together. We went to lunch at the cafe on the corner up the street from our house.
We’re spending the rest of the day doing stuff around the house, so we went to Lowe’s to investigate various projects we’ve been wanting to start.Marcia rocking her finest athleisure-wear:
We just got home, and now we’ll probably decompress and mess around on the internet until dinner. Or maybe the chores will actually happen? At least we scheduled a date Friday for a flooring guy to come do an estimate on two spots in the house we’re looking to rip up some carpet and lay vinyl.The tour jeans are so tight, I decided to put back on my sweats. That’s what a day off is for, right?! Or does this belong in unpop ops?
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Lazing about the house, today, so not much to report. Our house is from 1903, and we live on the lower level. This is the back: I clipped and repotted some succulents that were getting too tall/floppy for their pots. It’s been raining a lot the past few days, so it’s nice to get a break.
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Great Break pics @sabergirl !
Think about a Tour return to Europe,….............., anyone else?
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Actually, some of them are delicious
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Yes! Nopales are delicious. I bet you have easy access in Texas. They’re hard to find around here.
Actually, some of them are delicious
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Yep, dead easy. I can buy them in both my local grocery stores.
The fruit (prickly pear) also makes good jam, and local breweries sometimes add it into beer, which is also tasty, just to taunt you some more, neph.
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I worked some this weekend, and we played some, too. The locker room at work, and a good look at the tour jeans: Then they spent the shift wadded up in my locker, of course: We went to a street music event that Asheville has every summer called Downtown After 5, heard some tunes, and had some drinks. Any excuse to drink outdoors is all right by me: When we got home, Marcia whipped up some amazing sandwiches: Saturday night we had a curry at home (jar sauce and fresh veg, nothing gourmet like some of y’all out there: Tonight we went out for dinner with my parents, because they’re about to take off on a summer road trip: Fancier than how we eat at home, that’s for sure!
And that’s a pretty good representation of life around here. Mostly food, and some other things if the mood strikes us in between meals.
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I am now going to make Broccolini sandwiches this week… looks stupendous
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And that’s a pretty good representation of life around here. Mostly food, and some other things if the mood strikes us in between meals.
If the things you do inbetween food are drinking beer, wearing awesome denim and being with loved ones then life is pretty great. Thanks for the update Ann. Liked it a lot.
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It’s that time again, friends: Now that I have your attention, I’ve got some very special pics for you, today. You may recall that I work at the Inn on the Biltmore Estate. “Wtf is the Biltmore Estate?”, you’ve probably said to yourself. Biltmore is the largest private home in the USA. It was built by George Vanderbilt, the descendent of a transportation tycoon who was one of the robber barons of the industrial revolution. It is a French style chateau, on a still considerable parcel of land that once included the majority of Western North Carolina. Biltmore is unique, because the family has turned it into a profitable enterprise by selling tickets to enter the house and grounds, and it continues to be privately owned and operated by the family, and their ~2500 employees. The Estate was designed by Frederick Law Olmsted, the infamous landscape designer who was also responsible for Central Park, in NYC.
Enough history. Today, after work I went over to the Biltmore House to snap some photos of the Chihuly glass installation that will be on the Estate until October. I have seen his art before, but it’s always a treat to see in person, and I knew the forum would enjoy a look.My favorite part of Biltmore is definitely the Conservatory, which is an original greenhouse structure that looms over the gardens, and houses amazing mature tropical plants. i didn’t capture the scale, but those leaves are about 5 feet long! Up on the library terrace there is also a canopy of some type of creeper that is very well established.A little zoomed-in selfie I shot over one of the Chihuly pieces:Heres a couple of detail shots, though I know my crappy iPhone pics do the work no justice, it really is some of the world’s most remarkable blown glass.That’s all for today, folks! Til next time, I’ll just be here snugglin’ chihuahuas.
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